I’m Azi, I’m a 29 year old living in the UK and what you have come across is my Endometriosis journey that I want to share with you. It is one that has taught me the most and has made me realise that my experience with Endometriosis is unfortunately not so uncommon and that the horrible truth is this disease is to some extent destroying the lives of women. With this ugly truth my dream would be to help other women.
The first time I heard the word ‘Endometriosis’ I didn’t know what it meant so I wanted to do this blog to share everything I have experienced about this disease. I want it to be a place for others who may be in a similar position and feel the same way to come together and learn and share our experiences.
How many other women are suffering?
How can we get Endometriosis taken more seriously by the medical profession?
What can we do to understand this condition and help others?
The current statistics of diagnosis are far too long, on average it takes 7.5 years from onset of symptoms to get a diagnosis* and vague, 1 in 10 women of reproductive age in the UK suffer from endometriosis* although with my experience and conversations I have had with other Endometriosis sufferers I question this statistic. The more I speak to other women the more this chronic and debilitating condition becomes visible. I hope this page can provide a community where we can support each other and I would love to hear from you.
*https://endometriosis-uk.org 2019
What is Endometriosis aka Endo?
I think it’s important to understand what this condition is and the impact it has on the life of the invidiual who suffers from it. Endometriosis, pronounced end-o-me-tree-oh-sis, also known as, and frequently referenced throughout this blog as, Endo, is a progressive, chronic condition where cells similar to those that line the uterus (the endometrium) are found in surrounding organs in the reproductive area, such as outside the uterus, ovaries, bladder, bowel and pouch of Douglas. It can form outside of these organs or in some instances it can infiltrate into the tissues. It is estimated that 176 million women worldwide have Endo*. Whilst Endo can be capitalised by severely painful periods other symptoms are also attributed. Fortunately, for some women they will not experience any discomfort or realise they have Endo, but unfortunately for others it is a different story. I hope to explore this further and share experiences of this debilitating and life-changing condition.
*www.endometriosis-uk.org 2019
The Big E 