I always felt lost and with no real purpose. Since finding out I have this disease instead of feeling negative, which ironically is all I felt before the diagnosis, I now finally feel a sense of direction, I finally understand how I can hopefully help other women. This is more than just a page or a blog, this is a place for women to know they are not alone, I see you, we see each other, and together we see Endo.
I can’t promise this will be the most eloquent reading or be a grammatical masterpiece, my sister is the grammar queen, so to the readers and my sister Roxy, I’m sorry in advance for any mistakes which will most likely take place. What I can promise however is my life account of living with a disease I had no idea about and count myself very lucky that I now know. You will see the good, the bad, the ugly (I have warned you) and the reality of living with what is known as the invisible disease, Endometriosis. We need to make the invisible, visible.
Just because you can’t see it doesn’t mean it doesn’t exist…
Whilst little is known about this invisible disease there is one thing I can tell you, it is deceiving and unforgiving, and whilst it is not easily diagnosed it doesn’t mean we can’t do more to make symptoms recognised. After all, this is the main reason women are suffering far longer than they should. My dream would be for this page to be a platform for those suffering with Endo and for their family and friends. One of my hardest things I learnt about this disease was not just the effect it had on me but also how it affected my loved ones. At first they couldn’t understand what had happened to their Azi. A once fun loving, confident girl, full of energy and determination, turn into, well what was the TOTAL opposite, my mum once described it as ‘seeing her daughter sinking into this deep dark hole and not being able to pull her out’ and I couldn’t explain it. I was drowning. Every day I had this unexplainable feeling and I didn’t know why… you feel trapped and helpless, which I have learnt is an all too common feeling of suffers with Endo.
The Big E 